DEBRA member’s weekend 2023

On Saturday 13 May we had the pleasure of attending DEBRA Members Weekend to support an incredible national charity for people living with Epidermolysis Bullosa (EB).

It was such a great experience to be part of a fun-filled day for people of different ages, from children to adults, being surrounded by families and speaking with them to learn about their experiences of EB. Each individual has their own unique story and yet they remain so strong, positive and embrace life as much as they can. It is inspiring.

As the brand manager for UrgoTul, hearing about how our products can improve people’s lives is by far the best part of my job. There was one particular family I spoke to who were there with their daughter. They showed me photos of her as a baby where she was completely covered in blisters. To then see her on the day and be told that UrgoTul was the dressing that changed everything for her was such a proud moment.

Ben Harrison, Clinical Specialist in the South East region “The day, I found, brought a lot of emotions, particularly speaking as a dad to a 2-year-old. It was hard to see the effect that EB can have on people’s lives, especially the children.  However, there was a joy to the conference as like-minded people gathered together to share their experiences; and to see the children having fun with the games that were put on for them was amazing. It was a privilege to be there.”

I think it is amazing that DEBRA put on an event like this each year. Considering there are around 5,000 people in the UK who have EB, a relatively unknown condition, I can only imagine how isolating it must feel. This annual event is special in that it brings everyone together and just by being there, you really sense that community feel.

As well as their annual Member’s Weekend, DEBRA are currently running their ‘A Life Free of Pain’ appeal. Graeme Souness, ex-international footballer, TV pundit and DEBRA Vice President, will be taking to the water to swim the English Channel to raise funds for this great cause. If you’d like to support the campaign you can donate via the Fundraising page. Find out why supporting DEBRA and those living with EB means so much to Graeme here.

I’m really pleased we were able to partner with DEBRA as a Member’s Weekend Sponsor and help make a difference to the lives of people with EB.

Kaajal Thakker, UrgoTul Brand manager